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Tuesday, August 3, 2010

New medicine - again and a good day.

So, we tried another medicine to help lessen DW's tics. It was along the same lines as the last but suppose to be less as strong as the first or something like that. Within 48 hrs the same thing began to happen. He began to wet himself and by the next day, he again had diarrhea and this time, there was more than a speck of blood in his stool. So, we stopped it yet again. Not sure why though but, even though he's not taken any of the for more than a few days at a time and hasn't taken any in almost a four days now, they seem to have affected his tics. So far in a positive manner!

The blinking that he's had for years, the kind that contorted his face constantly, all day....it's very rare to see it now! Even on a down swing, this is the one tic that never went away, it was almost painful to watch even, his whole face would contort. In the last two days alone I can count the number of times I've seen it on two hands and feet, which is amazing. The HARD, sniffing and hiss breathing is so mild, that I don't even notice it unless I'm looking for it. He has gone from several dozen tics a day to just a handful!

The one that is probably the most annoying to everyone else though is the repeating thing. For example, today he said: "hey mom, I think we need that. Yeah I think we need that." or "I want nuggets for lunch, yeah nuggets for lunch". Seems to bother his cousins and stepbrothers more than me for some reason. Maybe it's hearing near silent grunting, no terrible sniffing that sounds like his head might pop off, no loud hissing after the sniffing, and loud triple grunting following all of that in less than thirty seconds. His tics are softer now, not OCD like - needing to be in groups of three or fours, they are random and mostly not back to back even. I don't really know if it happened from the meds or if it will last even. It could be just a big coincidence but, I will take the reprieve. Even DW seems a bit happier as his tics are not running rampant and wearing him down.

He's even taken to realizing that he cannot hear properly. So, instead of repeatedly asking us "what" a hundred times. He now walks up to us and asks us to repeat what we've just said. Which is nice for him and myself. His cousins had a time adjusting to his hearing today as they've not paid him much attention before but he told them he's getting hearing aids and they asked me why. We talked a little about what DW can and cannot hear. Which also led to a discussion about why Dathen repeats and what a tic is. So, it was a good afternoon for everyone.

So, for now, it's back to the drawing board for the tics but, I can wait. For right now, he seems ok and that is all I ever wanted for him. We'll also keep a positive attitude and hope that this lasts. :)

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