I know I've not really written a lot here lately....life has taken some crazy turns as of late!
DW's tics, rages, and any other behavior had gotten completely out of control. All the progress we'd made with various medications for his ADHD behaviors and anxiety seemed to just dissipate. His tics became increasingly violent and out of control. His functional abdominal pain took on a life of it's own again. He began to eat less and less, which led to drinking less and less. Since he has small kidneys and we were warned at birth about keeping an eye on them, this whole thing was really starting to scare me.
He began to turn grey and extremely white, dark purple circles under his eyes were now very common to see daily. He was at the bottom, very bottom, of the weight chart and there was talk from the doctor about taking medical action to stop his weight loss even. Already at the 5th percentile for his age group before all this began, the thought of how much he weighed before Christmas was making me sick.
He began to ONLY eat macaroni and cheese and want nothing else! Which having done some nutritional studies six years back when he was first diagnosed with MSPI, I knew could mean only one thing. That at 2 years old when all doctors and specialists reassured me that all kids outgrew their MSPI, they were wrong! I had learned some time ago that sometimes in certain intolerant or allergic individuals, they can become addicted to or crave the one food they are allergic to. So, my son repeatedly asking for macaroni, ice cream, etc. was a huge warning sign to me. Only, at this point, I would give in because some calories are better than none, right? If anyone has a child like this, we all no, that they will go days without eating if pushed too! I know, he's done it!
Right before Christmas I had resigned myself to the hospital stay I knew was inevitable. I was trying to figure out in my head how I would manage two children, one at home and one there. DW again, a very anxiety ridden child would not handle me being away from him, even for short periods of time. His father and him barely got along, so that would add more stress. JD would not understand what was going on and though I know that there are times he understands what I tell him, I'm not sure he always gets it and this would be one of those times.
Needless to say, I was almost beside myself, crying myself to sleep every night, begging, pleading for some miracle to happen. Every morning I'd wake though and it would all be the same. I was desperate and ready to try anything at this point.
Then a lady whom I've come to have much respect for, made a simple suggestion that would change our whole world. Ida, is a wonderful woman who works for and with Sensory Processing kiddos and their families. She had suggested putting DW on a LIQUID vitamin and probiotic. He already got a gummy vitamin because this was the only kind he could handle so I didn't see how a liquid would matter but, it turns out it would make all the difference in the world and lead to some more changes in our lives that so far, have been truly amazing!
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