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Friday, July 23, 2010

Three Signs of a Good Day!

First sign: DWs first dose of the new meds to help control or lessen the tics he has is down. Though I know it's fairly early to say this but...I'm trying to be CAUTIOUSLY optimistic! His tics have slowed to a crawl!!! Though it could be a very, very odd coincidence, I doubt it. It's been years since I've seen my son's face not contorted in a grimace from the blinking or wanted to scream from the NON stop verbal tics! I've become a pro though these last two years and know that I will not count my chickens til they've hatched. Meaning that I will wait it out before getting excited, see if there are side effects or if he adjusts as he always seems to do to new medication, especially when it's shown promise!

Second sign: I've gotten soo many responses from mothers with HOH or deaf children! DW has been invited to playdates, even picnics! I've got an appointment with the Nebraska Commission for the Deaf and Hard of Hearing to get the process rolling to get the device that will flash the lights when the phone rings. My husband would love this immensely! So, will I!! The lady there has already started looking for family ASL classes, though most likely I'll be the only one who can attend and will have to teach DW and his father! : ) We've been given a number or two to help with both funding to get my husband's cochlear implant for his one ear and two places to talk to about getting him hearing aids that are more suited for his kind of deafness!

Third sign: DW has SPD and is highly resistant to new textures or feelings. The thought of needing a hearing aid and having to have two, REALLY bothered him!! I've shown him numerous videos of kiddos getting aids, pictures of what his aids might look like. I called the audiologist lady so that he could be assured that his aid would not be white, as he's an aversion to white. Today he started talking about when he has his hearing aids this and that and if something is too loud how he's going to shut his ears off! lol When is he going to get them, etc. It was really a good thing to see. Now if he'll stay this way, is beyond me but, for today, it's a good sign.

2 comments:

  1. Glad to hear your son is being more open to wearing hearing aids. I hope things go well with your husband getting a CI or hearing aids.

    I also wanted to tell you of another blog to follow. If you go to my site, The Shaddox Boys, you will see MOXIE MOMMIE on the right hand side of blog links. She is a mom of a 12 year old with TS and writes some great blogs.

    Also, The World's Strongest Librarian, is a great site for TS. I am on facebook. Let me know if you want to be friends on there and glad you found my blog and I look forward to following your blog!

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  2. So, far he is, I hope he stays this way! I hope that my husband can get what he needs as well. I think he'd like it greatly.

    I am most definitely going to check out that other blog! I'm most definitely interested in the website as well. I will check them both out. Thanks so much for passing them onto me.

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