So tonight and tomorrow will be the tough.
Tonight they once again try him on a new medication to ease the tics and they couldn't come soon enough. When he gets upset or angry he smacks his head, HARD. Over and over and over again til he's crying but, he still cannot stop! If it's not that he'll claw at his arms and legs over and over and over again! If one more person tells me it's attention seeking behavior though, I may loose my marbles. Attention seeking behavior is behavior designed to get or maintain attention. When your child is doing it alone in his room because a toy is frustrating him, without calling for help or making a big deal out of it over and over again and doing it daily, it is not attention seeking. It is a part of the whole lovely package that goes with having TS child. So, I hope that this medication works for his level of tics and can bring them down like the last one did.
Tomorrow, is the ENT followed by the ear molds....I'm VERY worried about this. I don't know how he'll respond to the ear mold process and the feeling of something not only in his ear but, essentially blocking the hearing almost completely in one ear and then the other. I'm scared of how this will go and if he looses it, I don't know that I can calm him down enough for another ear. I really hope it goes well.
I've found a couple videos online that show him pretty much what the ear mold process is about and roughly how it will feel. Though, as I've never had one, it's not exactly easy to explain!! I wish it was done and over, that's how worried I am! I'm just praying like the dickens that this goes over well tomorrow and that if there are going to be any side effects from the meds that they do not interfere with tomorrow morning!
How did it go getting earmolds? I hope well!
ReplyDeleteSorry so late in reply to this! Been crazy!
ReplyDeleteIt actually went great! I took the OT's advice for his Sensory Processing issues and did a lot of "heavy work" before we went to kind of work out the kinks. He did well, even after she had to try 5 times to find the right sized cotton/foam! She ended up having to cut cotton down to size. He did a lot better that I thought he would, I was very proud of him.
He's actually excited about getting them. They let him pick the color red and blue swirls for his molds and for the aid itself he chose red as his first choice and blue if they did not have the red. I was surprised that they could do that. So, he's actually excited about getting them now.
Thanks for asking by the way! :)